Started with the taxol today. I was nervous to get started because of what I've read of people having reactions within the first few mins, someone here did sorry I can't remember who and scrolled back some but didn't see it. Anyways I did not thankfully and other than the coughing fit I had during the session everything went textbook. I have had major congestion for several weeks and while that seems to be clearing I now have post nasal drip which has resulted in some vicious coughing fits. I felt so embarrassed in the infusion room- it went on for a good 10 mins I just wanted to run and hide. They're really bad at night as soon as I try to be on any position other that propped straight up I start coughing. I am really hoping it ends soon.
I feel like the last 2 weeks were a bust. I was fairly nauseous from the last dose of AC for a good week, and nothing is appetizing (I lost 5 pounds). The only things that taste good/normal is milk and peanut butter crackers. I eat other things because i know i have to but they taste like nothing. I have a sicky sweet taste going on not metallic. My kids were both sick with whatever is floating around their school- I think it's norovirus. What's the deal with kids standing by the bed in the middle of the night saying mom I'm throwing up and sure enough it's everywhere. Had my share of that these last 2 weeks.
@3threebabies, when you had dry eyes were they burning? I have been able to get my contacts in for a few hours a day but man do my eyes burn. I use those systane drops but I don't think they really do anything. When I saw the eye doctor she said I could have developed an allergy to this brand of contact since I've used them for so many years to maybe try a new brand. Idk.
@Grace&Carolinesmom, congrats on finishing treatment
. Did you ring the bell? I see it on the wall at my place, saw one lady ring it so far and it was pretty anticlimactic. Did you get cleared to have the port removed? Oh how I can't wait for that day! I have a surgery date of July 26th for the double mastectomy and reconstruction so I imagine my port comes out thay day. Bye port.
I've been reading a lot about the ovary removal surgery and hysterectomy, and recovery. My oncologist says if in 4 weeks of the taxol my numbers are good she wants me to get this over with. Idk why but I am do on the fence about this. I am like torn between the whole thing or just the ovaries and tubes.
As far as other symptoms, I see that the nail beds on my thumbs are turning dark. I'm going to watch thay closely not that I can stop it but I keep them painted with the clear polish and use ice packs during treatment. Someone suggested frozen wash cloths a few times a day.
Saw a friend over the weekend and confessed what I'm going through. Turns out her bestie has brca1 positive too and has been through all of this twice. She finally had the double mastectomy and down stairs done and she is doing great. My friend is planning for the 3 of us to get together for coffee this weekend so I can pick her brain. I like my center and all, it's quiet, but I feel like it's too quiet. I read about all these informative centers with tons of resources but unless I read about it and ask the nurses they don't say much. I think it'll help to sit with someone and really ask what to expect.
I have also been very lazy lately. I have so many things I want to do, like make photo books for every year since the kids were born, but I have done nothing. I'm in a funk.
Wow this post got really long, sorry about that. I guess I should go write all of this in my journal now lol.
Edited to fix ACT to AC
. Still feeling crumby today but on the mend. Got the call to schedule my first infusion- Feb 8th. I feel somewhat relieved knowing the next step is in motion and in a few months this part will in the past. The center sent me a bunch of medications through the mail, the anti nausea stuff and the lidocaine topical. The nurse today didn't tell me the bring it or use the lidocaine as prep but I remember reading that so I'll have to call back and check. She did say to start taking Claritin this weekend for the neulasta shot. Anyone have experience with neulasta injection?
! I started with the adriamycin and cytoxan yesterday, it went really well. My blood pressure has been high lately so when I got there it was 156/95 and it didn't really improve. I need to keep an eye on that. I didn't feel anything while the meds were being administer and I was fine all last night and today so far. Is this the calm before the storm? The nurse said if I didn't have morning sickness with my kids, and I am not prone to motion sickness I should do pretty good in the nausea department. Hope so 
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