heatherlynn444
DIS Veteran
- Joined
- Jan 9, 2006
Heatherlynn - First, congratulations on your wedding and I'm sorry your disneymoon wasn't as magical as you hoped. (I jumped over here from the GF thread to hear more and see pics!) I am hoping the next instalment has everyone back to feeling great. We had a family vacation to the GF RPC in November and both our boys (twins age 8) got a bug. I found the ladies in the RPC lounge to be wonderful, making sure I had crackers etc for whichever boy was back in the hotel room with me, and feeding me leftover snacks (and a glass of wine!) to help ease the disappointment of being back with a sick boy (poor little guys!) while my husband was enjoying the parks with his healthy twin. Upon reflection, it gave my hubbie some good bonding time with the boys!
I was also interested in sickly's ailments. Sounds morbid, so here is an explanation. Our boys were born >3 months early, and 1 son has cerebral palsy (you spelled it right) and reflux - and he had a fundoplication at age 4. Before the surgery, the reflux was so bad he vomited 10+ times a week, which explains why he developed a need for a feeding tube, which he still needs for nighttime supplemental feeding. After the surgery, he too cannot vomit or burp (but he does get the hiccups a lot!). He does have some awful retching episodes. These can be so violent that they have at times caused him to "vomit" up blood. As a result, we have a very short list of potential caregivers who will not freak out if this happens. And don't even think of playdates or sleepovers, because he just doesn't get invited and we know we need to have playdates here! (Whoops, got off on a tangential whine there!)
Our son is very verbal and bright and he has impressed his docs with his ability to articulate what he is feeling. He complains of periodic stomach pain that he cannot really describe. I suspect your husband (ooh, doesn't that sound nice?!?) could describe even better. Thankfully, the stomach pain episodes seem much less frequent. He does get full very quickly, though.
Because of our son's CP, we can completely relate to your discomfort with being stared at. I'd like to say we are used to it, but that's not really true. We humans are a curious lot, and I hope people are looking with compassion, but I don't always feel that way. In fact, I know people can be quite forward and ignorant, based on some of the questions I am asked ("what's wrong with that one?" was one of my "favourites" when they were little. I swear, people actually said that. They also asked if they were "real" twins, so go figure!)
In any case, I think you should start saving those pennies for a "do-over" trip. With a long and happy marriage ahead of you, hopefully you'll be able to have many trips back to WDW!
Best wishes,
Twinmum
twinmum, I'm so sorry your son had to have that surgey at such a young age. When sickly had his surgey, he had just fiished up football season and lost 43 pounds b/c he couldn't eat soild food for the longest time. He is more seceptibal (sp) to food poisoning and had an ultra sensitive stomach. we can eat the same things and he will get an upset stomach and I will not. sickly said he gets stomach aches when he overeats b/c his stomach gets so full (which is wrapped around his esophagus) and it puts pressure on and crushes his esophagus and makes him feel awful. so his pain could possibly be from overeating? also he said a lot of times his stomach pains feel like period cramps. they told him thats what it would feel like after his surgery. he gets really really bloated, too. when I am on my period and hurting badly he can honestly say "i know how you feel" and feels sympathy for me and its nice! hhaha. I hope this helped you in any way! and I agree, we need a do-over! hopefully when sickly gets out of law school and starts a job I can keep whatever job I have and save for disney!