OT please help National CHD Awareness Bill

[cometzero]

Hi I hope it is ok to post this here, if not please take it away. I am trying to get a national Congenital heart defect Awarenss Bill passed and since I knew there were some families here affected by CHDs, I hoped I could get some help w/ this. here is the letter that was sent out yesterday, Thanks Lyn www.caringbridge.org/nj/justinw



Once again, we are asking for your help in yet another attempt to
have CHD
Awareness Week proclaimed on a national level.

Thanks to Lyn Wyatt, a Bill has been introduced into the House of
Representatives to have February 7-14 proclaimed as National CHD
Awareness
Week. The sponsors of the bill are Rep. Robert Andrews (NJ) and Rep.
Vito
Fossella (NY).

Although the Bill is currently still in committee and has not been
put up for a
vote by the full House yet, we have been advised that now would be a
good time
for people to start writing to their Representative to ask for their
support.

Please help to get this passed by writing to your Representative
asking for
their support! More information, a sample letter, and a link to find
your
Rep.'s email information is on: http://tchin.org/aware/letter.htm

Feel free to pass the link along to friends, relatives and
neighbors, and other
online support groups!

If the Resolution passes in the House, it will then go to the
Senate, so we
will have to repeat the email and phone calls to our Senators at
that time. If
it passes both the House and the Senate, it then goes to the
President for
signature and will become PERMANENT!

Thank-you in advance for your help with this effort, and your
continued support
of the Congenital Heart Information Network.

Mona Barmash
Congenital Heart Information Network
www.tchin.org

ps here is a link to the bill Lyn
http://thomas.loc.gov/cgi-bin/query/z?c109:H.RES.305:

 

[roseprincess]

Cometzero, thanks for posting this info!
I would say there is not enough general awareness about CHDs like there is for autism, CP,pediatric cancers, or Downs Syndrome.

It's interesting, my dd's ped. cardiologist never mentions anything about CHD awareness to me. This is the first I have seen about this,so I hope the bill passes!


Rosemarie

 

[SueM in MN]

thanks for posting.

 

[cometzero]

thanks, I know It alway amazes me that it is the most comman birth defect and twice as many kids die of chd as all forms of ped cancer combined, but most people have never heard of it. Do you belong to any CHD online groups? I belong to a couple if you every want the links, just email me. Lyn www.caringbridge.org/nj/justinw

 

[tbelfonti]

We contacted our representative about this last week Thanks !!!

 

[javamom]

Will be pushing for this from Kansas. Thanks for posting it. Hoping to bring my heart kid to Disney for the very first (and probably last, due to the cost of it) time December of '06.

Steph,
Mom to DS, Bicuspid aortic valve, mitral valve damage, and repaired Coarctation of the aorta (@11 days of age)