Cancer and Disney

dmcdixie

Mouseketeer
Joined
Sep 30, 2014
so I am a huge dL fan even gave in and got passes a year ago. Well as a mom of two DD I was just diagnosed with Stage 3 PAncreatic cancer. I am 40 and the DD’s 5 and 8.

We have had to cancel all travel. So my sister and I are going to surprise them with a trip for the 2 days after my last chemo in July. How bad will it be? We have 0 clue in my ability and have decided to stay at the Grand, why not if I only have so much time.

I would love any and all advice on the Grand and in the parks so far I am a pretty slow mover. I used a scooter at Costco and got so many dirty looks it was embarrassing. I don’t want my kids judged any more. #cancersucks
 
so I am a huge dL fan even gave in and got passes a year ago. Well as a mom of two DD I was just diagnosed with Stage 3 PAncreatic cancer. I am 40 and the DD’s 5 and 8.

We have had to cancel all travel. So my sister and I are going to surprise them with a trip for the 2 days after my last chemo in July. How bad will it be? We have 0 clue in my ability and have decided to stay at the Grand, why not if I only have so much time.

I would love any and all advice on the Grand and in the parks so far I am a pretty slow mover. I used a scooter at Costco and got so many dirty looks it was embarrassing. I don’t want my kids judged any more. #cancersucks
 
I am so sorry about your diagnosis. Do not worry about dirty looks if you need the scooter, you are there to enjoy these moments with your daughters!! I don't have any advice about the Grand unfortunately. Not sure how bad it will be, depends on how you are with the chemo. I would make sure you have any anti nausea meds or anything else you may need in order before you go. I applaud you for being so brave to make the trip for your kids...they will be so excited and I think it's what you all need right now!! ❤
Blessings,
Molly
 


Wow, I am so sorry that you are having to go through this. I hope you have a great time at DL and that the energy there gives you a needed boost to get you through with your daughters.

What do you mean by "how bad is it"? Are you asking about crowds in July or something else?

We've only stayed at the GCH once -- we had a room overlooking the park and it was awesome. The only thing about those rooms is that it's a VERY long walk to the room from the entrance. But it might be nice to have something with a nice view in case you're needing to take some time in the room to rest. Some of the pool view rooms are a little closer. Another thing you can do if you're feeling tired is just hang out in the lobby. It has great ambiance and is very relaxing. Don't know if you're planning any pool time, but they do have cabanas at the GCH. You could rent one and hang out there while the kids are swimming if you wanted, and they're great for keeping away from the crowds.
 
July won't be too terrible as a lot of local passes are blocked out. You get that scooter, you take those sweet girls, and you have an amazing time. Ignore the looks. Or smile your biggest smile and tell them you just finished chemo and are giving your body a break, that should remind them never to judge. <3
 


so I am a huge dL fan even gave in and got passes a year ago. Well as a mom of two DD I was just diagnosed with Stage 3 PAncreatic cancer. I am 40 and the DD’s 5 and 8.

We have had to cancel all travel. So my sister and I are going to surprise them with a trip for the 2 days after my last chemo in July. How bad will it be? We have 0 clue in my ability and have decided to stay at the Grand, why not if I only have so much time.

I would love any and all advice on the Grand and in the parks so far I am a pretty slow mover. I used a scooter at Costco and got so many dirty looks it was embarrassing. I don’t want my kids judged any more. #cancersucks
July will be fine for you and the kids. After all your chemo, your stamina will be lacking. But don't let that stop you.
The GCH will be easy and convenient. I like to request a room near the elevators.

Deckert's as well as other scooter rentals are available for a trip to DLR. DO NOT skip a scooter. This will make the trip for all of you!
People of all ages are using scooters in the park. My DIL-30's used one for two different trips to DLR due to foot issues. I don't recall any dirty looks at all. It's the only way to see the parks when your stamina is limited.

July can and will be warm. Start early if you're able to, take pool breaks in the heat of the day. Breaks or naps are easy to fit in when the daily schedules are long. Know where the shady spots are and stay hydrated.

MaxPass will be nice for photos but you probably already know that.

I wish you the best through your treatments.
Time in the parks will lift your spirits after all you're going through.

pixiedust:

Geemo
 
God bless you and your family. Enjoy the heck out of it, and do everything you can to relieve your stress - definitely use the scooter. A stint at the GCH will be helpful for any time you need a rest.
 
I recommend reading this trip report: https://www.disboards.com/threads/p...018-update-3-10-day-3-dining-reports.3667508/
It will give you an idea of about how much rest you will need.

Just don't overbook/overextend yourself. I wouldn't probably schedule anything and just go at your own pace. Staying at the Grand is a good idea. If you get exhausted, it will be the shortest walk. Don't worry about the scooter. Disneyland is always full of scooters and I've never seen any issues with it. Have fun and take care of yourself and your family.
 
This is sad to hear. I feel for your children and family. My husband works with cancer patients and some types are more treatable than others.
I hope you can enjoy your trip and your kids have wonderful memories of going with you. Make sure you're in the pictures too so they have them to keep.
Have a great trip!

Oh, and use the scooter! Who cares what other people think?!
 
I recommend reading this trip report: https://www.disboards.com/threads/p...018-update-3-10-day-3-dining-reports.3667508/
It will give you an idea of about how much rest you will need.

Just don't overbook/overextend yourself. I wouldn't probably schedule anything and just go at your own pace. Staying at the Grand is a good idea. If you get exhausted, it will be the shortest walk. Don't worry about the scooter. Disneyland is always full of scooters and I've never seen any issues with it. Have fun and take care of yourself and your family.
This was so helpful! Thank you!
 
I wish you the best.

Assume any dirty look is simply a sign that the person is thinking of something icky or that they are about to burp. Don’t take it personally. Being someone with hereditary “RBF”, I can state firmly that you can’t always trust a face to say what it means.

Know that the first aid stations in each park have actual registered nurses. They are like some small old fashioned hospital inside, so if you need a space to lie down, hydrate, cool off, etc, head on over.
 
I'm so sorry about your diagnosis. I will keep you in my prayers for your healing. Do check with your oncologist to see what their feeling is about making a trip then.

Being in remission from multiple myeloma(a plasma cancer), I decided to splurge on an annual pass this year and have made two trips so far, and one planned for August with DD21 and DS16. I've changed my approach to the parks because of my energy levels, which can be very variable, but I think it is for the better. I'm less ride/goal oriented, and more focused on the ambiance and magic in general. I try and focus on what I can do, rather than what I'm not doing. I'm just grateful to be there. I'm also going to splurge on a Fantasmic dining package and a World of Color dining package. Waiting for those types of things can be very hard on you.

I hear what you're saying about the scooter, but that might be because people can be very self absorbed and startled out of their distraction by needing to pay attention to where they're going when they come across a scooter. I know I can be guilty of that myself. It's definitely not about you, though.

Use Maxpass! If nothing else, it will allow you to get fantastic photos with your daughters. Do them all. Ask for Magic Shots. Our favourite family pictures are ones we've gotten from Fastpass photographers, particularly on our first trip after my treatment.

I hope that your treatment goes well, and that you have an amazing time at Disneyland. God bless!
 
July won't be too terrible as a lot of local passes are blocked out. You get that scooter, you take those sweet girls, and you have an amazing time. Ignore the looks. Or smile your biggest smile and tell them you just finished chemo and are giving your body a break, that should remind them never to judge. <3
You could also get an "I'm celebrating" button and add "finishing chemo". I was touched my how many people congratulated me and how many little extra special things CMs would do when I wore my "I'm celebrating being in remission" button. Get them for your girls, too. "I'm celebrating Mom finishing chemo". It really touches people, I think. Brings them out of their tunnel vision in a way.
 
I am so sorry to hear about your diagnosis and wish the best for you. I think the trip is a wonderful idea, and have a few thoughts based on my own experience (as a fellow 40 year old AP holder who has some major health conditions—heart failure, I need a transplant—and getting close to the point where I will need a mobility scooter in order to make it through the partial day in the parks that my condition allows), which might be helpful.

As I will probably need a scooter soon, I really paid attention last time I was in the parks to the scooter using population and was pleasantly surprised that it is a really widely varying group of people. I saw everyone from teenagers on up using them, people who had visible disabilities and those (like myself) who didn’t and “looked healthy”, and I did not see very many people giving them judgmental looks. It seemed like the population using them definitely skewed younger than the population I’ve seen using them at grocery stores. I was there nearly a week, doing half days with breaks, during Dapper Day (so, read: very busy) and I could basically count on one hand the number of times I saw someone giving a rude look. At Disneyland, people seem a lot more understanding than at the grocery store. So, don’t worry about the looks.



With major or chronic health conditions, stamina can often be an issue, so what I often do is plan a lengthy midday rest break, or I plan to hit the park at rope drop and go until I run low on energy (usually after lunch) and head back to the hotel for the day at that time. You’ll have a good handle on your energy flow and peaks and valleys by that time and can better plan your day to take advantage of your peak energy times. For me, it’s early in the day, so I always do rope drop, but for one of my friends who had cancer and visited Disney, it was usually late morning, so she shifted her day to focus on being in park when she was feeling her best and had the most energy.

Also, as I never know, from day to say, how my energy will be, I tend to be flexible in my meal plans, booking table service for lunches instead of dinner, and planning dinners to either be counter service or my own food I bring (I have a fair amount of dietary restrictions with my condition). Also, this way I am also less tired and better able to enjoy my nice meals, I am not so exhausted and can enjoy my meal more with my companions.

MaxPass is amazing. The photopass feature is great, I would just suggest (since you will be there during a busy and warm time of year), possibly planning your family photo taking sessions or character meet and greets earlier in the day when possible so you can limit the amount of time you have to wait in the heat/sun (also, the lines are shorter then). And being able to get fast passes without having to head to the rides will save you so much time/energy and reduce your frustration levels. It is worth every penny.

Talk to your doctors (both specialists and general practitioner) and ask them for suggestions or guidelines to help make your trip better. They will know both you and your condition the best and could give pointers. I’ve found that if I tell them a brief synopsis of what I am already planning to do to make my trip successful, that helps them think of suggestions to add on.

Familiarize yourself with the locations for the first aid locations in both parks. And be prepared to use them if you need a cool rest spot in the summer heat. Also, keep a mental or written list of places you can go to cool off quickly (like Tiki Room, Great Moments with Mr Lincoln, etc.) in case you need them.

I always make sure I have a printed list of all of my medications with me (my health care system actually prints out a visit summary where it lists all meds and all major medical conditions, and I take the most recent summary with me in my purse into the parks just in case) just in case I need to visit first aid or go to the ER.

If you have any medical alert bracelet/necklace with details about your condition, wear that (or possibly consider getting one made—ask your doctors if they think you should based off of any medications you may still be on or issues related to your condition or recent chemo). I wear mine because I am on blood thinners and also have a defibrillator/pacemaker implanted (so I am not supposed to be shocked my an external defibrillator), and I also carry my defibrillator info card from my device maker in my wallet in the photo ID window so it is highly visible. I’m not sure what doctors are currently advising for travel while battling cancer. My grandmother (an inveterate traveler) had one made when she had cancer & traveled per her doctors advice, but that was years ago.

Drink plenty of water. If your doctors have you on any sort of fluid restrictions/limitations due to your condition or meds, ask them specifically what they would suggest you drink while being at Disneyland in Southern California in July. Mine usually require very strict limitations, but when I’m at Disneyland during non-winter months they always have me boost my fluids by 25% extra because I sweat so much.

And I agree with Kyrkea...I focus a lot more on the ambiance and special moments with family and friends nowadays versus hitting a million rides and I feel like I love the parks even more now that I have to go a little slower and take more rest breaks. You truly can enjoy so much in the parks, they are incredibly well designed so that every person can take them at their own pace/preferred touring style and have a great time regardless.

Have fun on your trip and I am sending all my best thoughts your way to help you through the chemo and afterwards. I hope you guys have a truly magical trip.

~Meg
 

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