jharrowell
Disney Phreak
- Joined
- Jun 3, 2007
As us Brits say: Just sit back and have a nice cup of tea.
I'm sure it's just a mix up, it'll be fine.
As us Brits say: Just sit back and have a nice cup of tea.
I'm sure it's just a mix up, it'll be fine.
That is awful! I'm so worried about something simular happening to us. We are flying from Alaska, which is a 7 hour trip just to Seattle! With James needing to eat/drink during the day (feeding tube), I asked if there was any way we could fly out the night before and do a "red-eye". Then we could at least get to GKTW on our first day, and I won't have to bring his formula on the plane with the pump and everything else that goes with tube feeds, and give him meds during the flight. I'm suppose to talk to the travel person today, and I'm nervous we're going to be in th esame boat you are. I hope it's a mix up! Oh we had also asked in the begining if we could fly one day early and just pay for our own hotel that first day so we could recoup from the flight, and show up at GKTW first thing in the am...this didn't happen for us, but maybe you can?
Alright guys Ima little panicky right now. I just got a confirmation e-mail from the shuttle service MAW is getting to take us to the airport and it has a pick-up time of 12:40 pm. Our flight was supposed to leave at 9:35am and still we wouldnt be there until 8:30pm. If they changed our flight to a later time that means if our pick-up is 12:40 an hour ride to airport and get there 2 hours before that puts it at 3:40pm before we even leave and it's a 8 hour flight at least! That means we wouldnt even be getting to Florida until after midnight. OK Im freaking out. I had to get used to the idea of our 1st entire day gone at getting there at 8:30 and now if we dont get there until midnight were going to be to tired to do anything the second day.
Ok, that felt good to ramble on. Sorry about that. Hopefully it's just a mix-up. I already have an e-mail into our Wish Granter so hopefully they'll get back to me before I go Crazy
Thanks Melissa. I will definetley be thinking about the high back and head support. One of his biggest issue is endurance/fatigue. He is still not back in school but we have a meeting next week and his PT did say using it when he starts school would be a good idea. Anyway thanks for the input and I will let you all know what we end up with. The one thing I really like about the loaner is it's super lightweight. It's a Ti lite. Im loving the embroidery option and all the cool colors. Lots to think about.
13 days tell Disney!! I went and bought me 2 new pairs of shoes yesterday. A pair of Crocs and a pair of Teva mush flip flops. I am not a tennis shoe person so I really hope these wont kill my feet on the trip. One question the crocs have little bumps all over the inside, are you supposed to wear socks with crocs? I know silly question but I've never worn them and dont know anyone that has.
You can definitely wear socks with them if you want! I have seen lots of people do it. We don't with ours. I bought Crocs for myself and all the kids our first trip and LOVED them!! Your feet will get used to those little bumps...I actually forgot they had them!! They are great for the rides you get wet on too...Dry super quick!!!
13 days?????????? Holy Cow...............how did that happen?
Are the kids bouncing off the walls yet?
Glad to hear the flight fiasco ended up just being a mix-up. Like you needed the added stress huh?
I can't help you with the shoes.................the kids and I just wore cheapie Walmart flip flops. Guess we have tough feet LOL
RE: Wheelchair...James has to have a high backed chair for the bus, but he has "muscle wasting" so they were worried if the bus stopped his head would go all bobbly.
We were given a "make-do" wheelchair last July, back when I was still able to convince myself his illness was temporary, but it isn't a very good chair.
James' PT sent the order for a custom chair in last week, and I was told we may want a "tilt in space" so that it reclines when James gets tired (most of the day) and it is easier for his tube feeds. I seriously doubt we'll have his new on before we leave (3 weeks 3days)
OK, is it normal that I'm jealous your son got a rental wheelchair? He looks so happy in it, and I love the red. How cool that they can be made so custom. I found a thing that goes on the front of kiddy w/c's that looks like a semi truck, or a fire truck, they are so cute. James is too big for those now, but I thought they looked fun for younger kiddo's.
I'm so glad you posted about renting, b/c I had never even thought about renting one.
Does James have a PT? If so I would ask them about possibly putting in for a rental for your trip so since your other wont be in. That's what their doing for us. Where did you see the truck's and such for the chair's I'd be interested in looking at them.