Captain_Oblivious
DIS Dad #257, Galactic Salad Dodger
- Joined
- Nov 10, 2008
ok, were back from philly. here we go. the little spot is still there. the spot has some inflamation around it. meaning, doctors feel it is not a new tumor but a result of the stereotactic radiation. which is common. hes not to concerned about it but is going to watch it. if she gets any pain or trouble, they can put her on steroids but he doesnt want to do that unless she has problems. we go back nov. 14th for another mri and to see him again. so, in the range of. oops, spot on the film to brain tumor we have to go in and get it today, i think we got half decent news. it seems he remembers us as the disney family and is a fan himself. so, we are taking at good news. thanks for all the prayers,textes, concerns over that last few days!!!! he said go to disney world and have a great time!!!!
More news on the positive side. We got back from the Doctor a little while ago. We waited about 45 minutes and they then spent about an hour with her. First the attending who saw her in the ER and then the staff doctor. He is also head of the department. Both were really thorough with great "bedside" manners.
They decided to hold off on the lumbar puncture. I think they said that it was the sixth optical nerve that is causing the problem. It prevents her from turning her right eye to the right. They said there was no chance of damaging it further, and should get better with time. If it doesn't, surgery is a possibility. They won't even think about that route for six months.
In the meantime, glasses were ruled out because it wouldn't help. She needs to wear an eye patch to counteract the double vision. She is not happy with going back to school wearing a patch so he suggested sunglasses with frosted scotch tape on the inside. She still wasn't happy. It didn't help that I keep making pirate jokes. That and the doctor said cosmetic issues were not something to consider. We go back in four weeks. Hopefully it will be better by then.
Trying to get her to look on the bright side, at least she is partway to her halloween costume. For some reason she doesn't think that is funny either.
Glad to hear all the good news! And I thought the pirate thing was funny, but what do I know?
It did! Check out my facebook page (can't get it to post here remotely...)
Can't get to FB at work, but I'll check it out when I get home...